Medical

Helping out

by Mitcheal John
Created Oct 24, 2020 | Dallas
$0 raised of $4,000 goal 0.00%
  • 0 Donations
  • No deadline
  • 5 Likes
We need your help to raise funds for Xavier, a 23 month old little boy left with permanent brain damage as a result of a common viral infection gone wrong. Xavier was a cheeky and active little boy who loved running around, playing with his toy cars in the sandpit and getting into all sorts of mischief. However, this all changed late last year when an unexpected turn of events changed his life. This is his story: On 12 November 2019, Xavier started to have a fever that wouldn't go away with Panadol/ Nurofen. Within 2 days he started having diarrhea and with no improvement to his fever, his parents decided to take him to emergency. The next 24 hours turned their life upside down as he was diagnosed with a rare brain disease as a result of the gastro virus going rogue and attacking his brain cells. Xavier was officially diagnosed with Acute Necrotizing Encephalopathy (ANE) and for 19 days he remained in a coma with breathing support. ANE is a very rare and aggressive disease that typically affects young children. As the disease rapidly progresses, it has a high mortality rate and only about 500 cases have been reported worldwide. ANE has caused extensive damage to large areas of Xavier’s brain and as a result he now is less alert, has severe visual impairment, he is feeding through a gastric nasal tube, has acquired cerebral palsy, global developmental delay and gross motor disability. Due to the rarity of this disease, the team of Doctors at the Sydney Children's Hospital in Randwick are in uncharted waters because the impact of the ANE varies with each case. Xavier has had the best of the best doctors caring for him and helping him build a rehab program that will hopefully lead to his gross motor skills and eye sight improving, enabling Xavier to be able to support himself and communicate again. The team of Doctors involved in his diagnosis and care included Neurologists, a Genetics team, a Metabolics team, Immunologists, Infectious diseases team and Acute Pain management teams. Xavier is a fighter and in the past 3 months has made positive steps in the right direction. At times, he can hold his head up unsupported and is showing some purposeful movement which are the building blocks for his recovery. He has a long road ahead of him and the next six months present a crucial window to Xavier's recovery with intensive rehab designed to help build new brain pathways and muscle memory to increase his functionality. Rehab involves coordination by Neurologists, Occupational Therapists, Speech Pathologists, Paediatricians, Opthamologists, Dieticians, Physiotherapists, hydro therapy etc. Xavier is transitioning out of the public hospital system and entering the private system. The cost of this therapy is around $100,000 per year. All parents want the very best for their children, and this is never more true than the wish Xavier's parents have for him. This is where we need your donations to help fund the cost of his rehabilitation and alleviate the financial pressure off an already stretched family. The 24/7 care needed for a high dependent child is mind blowing.
There are no donations
No results have been found

Trending Campaign

Top Trending Campaigns

Help Our Dog
Animal
Help Our Dog

We are raising funds for our dog. Please donate us.

$51,330 146.66%
raised of $35,000
by Daniella Teixeira No deadline
The Mateo Vet
Animal
The Mateo Vet

Want to join me in making a difference? I'm Dr. Mateo I've been a veterinarian f...

$51,320 513.20%
raised of $10,000
by Justin Harnish No deadline
Legal Defense Fund
Animal
Legal Defense Fund

We need funds for legal funds. Please help us. Thanks

$51,300 51.30%
raised of $100,000
by Chris Poole No deadline

Featured Campaigns

Campaigns selected by our team

Horse Farm Needed Funds
Animal
Horse Farm Needed Funds

Horses farm needed funds. Please help us. Thank you

$45,905 91.81%
raised of $50,000
by Chris Poole No deadline
Support Wildlife
Animal
Support Wildlife

We need urgent funds for wildlife.

$50,425 50.43%
raised of $100,000
by Lachlan Bailey No deadline
Help Feed the Animals During Lockdown
Animal
Help Feed the Animals During Lockdown

Help Feed the Animals During Lockdown

$46,205 924.10%
raised of $5,000
by Christian Frank No deadline

Related Campaigns

Take a look at other campaigns in the same category.

Helf to medical
Medical
Helf to medical

Hallo my name is giri, i need to help to my mother, my mother has teroids, catar...

$0 0.00%
raised of $15,000
by Giri artana No deadline
HELP A CHILD TO HEAL TODAY
Medical
HELP A CHILD TO HEAL TODAY

Twelve-year-old Martin was born at home in Uganda but his mother rushed him to h...

$0 0.00%
raised of $9,520
by OneRestStar Foundation No deadline
Disability Rights Charity
Medical
Disability Rights Charity

I am a doctor by profession. I can't cope with work due to disability. I was sev...

$0 0.00%
raised of $50,000
by Dr. Anees Ur Rehman No deadline